Category Archives: Stories

Living With Lyme: Staying In My Body, and Advice from a Petite Pilates Princess

A resting place when not feeling ill during a training walk last week.

A resting place when feeling ill during a training walk last week.

Something’s off.

Even after 20 years of living with chronic Lyme disease, I can tell that something’s not right. Symptoms are not lessening like they should have, after I drastically reduced my work load  by leaving my private chef position in February and adopting a much gentler lifestyle. And new ones have returned from dormancy, which Muffin reminds me existed years ago and were signals that I was entering another period of active Lyme that needed serious treatment.

I’m not jumping to the conclusion that I’m on that path now.

But something’s offAnd because of that, my defenses are down.

Last week was particularly rough, and I got to a point where I felt very vulnerable, and scared, and anxious. It was a physical feeling, and for days I was in a cloud, and shaky, and extremely low. And so I kept breathing, kept working through the brain fogs and shakes, and tried some shadier methods to get everything back on track, to no avail.

So I sat to meditate – my unquestionable source of calm amongst any storm.

And as I sat, breathing slowly, calming my mind, things got worse. Instead of feeling more in control, I felt extremely more exposed. Things I had never worried about before flooded my chest. I was petrified. I talked (out loud) through that fear: “I’m going to stop doing this now, and turn on the lights, and read in bed until I fall asleep, okay, whatever’s out there?” And that’s what I did. It was very creepy. I wouldn’t have been the bit surprised if all my electronics turned on automatically and Mitra’s head spun in a 360.

So, what do you do when you can’t separate your mind from the sensations of your body? Continue reading

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Living with Lyme: Walking Meditation

Walking barefoot in the quiet of a Spring day.

Walking barefoot in the quiet of a Spring day.

Last night I had to explain to someone close to me how my body works. How, after having had Lyme Disease off and on for almost twenty years, it’s harder to do simple things that I can no longer afford to ignore. I’m not debilitated. Not by any means. But sometimes walking up stairs makes me scream inside. Sometimes holding onto a conversation takes an obscene amount of concentration. Sometimes I realize that no one around me is aware that I’m loaded with small but consistent amounts of pain medication to make it through the job and that I may have blacked out when no one was around only hours before. When I plan any work or social events on back-to-back days, I have to plan precious hours between them or know that it’s going to take a few days to catch up afterwards. I count my blessings – this isn’t about a sob story or a cry for a solution. It’s about the little things that keep it all in check.

Today my dearest friend, whom I will forevermore call Muffin on here, told me I’d made a brave decision in leaving the well-paid cooking job that I loved but that completely depleted my limited stores of energy. Since that time my days have been a weird crucible of covering events, interviewing chefs, working on a book pitch for me and Brent, working on a chef’s book pitch, and keeping my family business in check. I make up for the lost income by cooking at photo shoots or stepping in at my prior job – both which require those small but consistent doses of prescribed pain killers and muscle relaxers. Some days, like yesterday, the consistent amount of work it takes to prevent a flare up feels like too much. I don’t look sick, and for that I am thankful. And the work I do in my private time is enough to ensure that most people don’t see me at a weakened state. Again, I count myself lucky for that.

But it takes work, and being completely aware of a restorative moment.

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Australian Food Is About More Than Tim Tams

TheDustyBaker-Aussie Foodie Lunch-3

“When do u think they will send us to do a real-life review of the food scene?”

Lauren from Keep It Sweet Desserts tweeted this to Audra (The Baker Chick), Joanne (Eats Well With Others) and myself after we’d rolled our way out of a luncheon hosted by Tourism Australia.

Our collective knowledge about the food and wine scene in Australia had been quite abysmal; Audra admitted to Bloomin Onions, some guy at the next table threw out the “shrimp on the barbie” line, and all I could come up with (other than the little lamb chops I love to rub in olive oil and sear to a quick crisp) was the Tim Tam Slam, which I have never personally experienced but remembered having been introduced to by an Australian acquaintance years ago, and which I mentally bookmarked so I could one day get my hands on some and replicate the little cookies for gluten- and dairy-free eaters (more on that later).

We’d been pulled together at the Sunburnt Calf on the Upper West Side at noon on a Tuesday to be treated to some tasty plates and an education on Australian food and wine. Yes, food bloggers and writers really do have rough lives. And as I sipped away my exhaustion with some pretty stellar Chardonnay and put faces and voices to avatars and URLs, we became enamored by the island that is so far, far away.

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Kitch+Table Brownies with Dairy-Free Creme Anglaise – Gluten and Dairy Free!

Kitch+Table Gluten-Free Brownies, Dairy-free Creme Anglaise and Dairy-Free Fudge Sauce

Kitch+Table Gluten-Free Brownies, Dairy-free Creme Anglaise and Dairy-Free Fudge Sauce

There are moments here in New York City, when I feel like I’m living out a television episode or something. Yesterday, walking from Rockefeller Center to Times Square, I was hit in such a moment.

I’d just come from doing an infomercial at a salon a friend owns, three stories above where the big ol Christmas sits during the holidays. Now and then he treats me to a cut or color or, in this case, a treatment that makes my hair shiny and soft. It’s been just over a year since I’ve been on camera, and though I was put off at first by the much larger production scale than I’d expected (there’s money in beauty product advertising), I quickly fell back into the fun of it. And evidently the 4 years of drama school and 10 years of city living mean I actually can do what I’ve been trained to do, so it sorta kicked ass.

Me getting the treatment down two weeks ago or so.

Me getting the treatment down two weeks ago or so.

I then hoofed it to Times Square to pick up some tickets for my sister (the kitsch factor in that area is laughable now, and most readily avoided), and subway’d it down to Union Square. Being early for brunch with friends (2:30 is totally acceptable time for eggs on a Sunday), I sneaked into a single spot at the bar at Union Square Cafe and treated myself to half a dozen oysters and a killer Bloody Derby*.

Times Square hoofing.

Times Square hoofing.

There was something about the tone of my day – the color, the weather, the bustle of tourists, the quiet subway car, the packed bar, the good food – that reminded me why life in New York is so sweet, and generous, and rather sexy sometimes.

Brunch of Sexiness #1. Totally beat out Brunch #2

Brunch of Sexiness #1. Totally beat out Brunch #2

Now, I feel like this little ramble should connect to this recipe, because if I was a serious food blogger than all things in my daily life would connect to the things I bake and blog about, right? I’d have more of a shtick and more than 3 people who read this would know what a Bloody Derby** is because I’ve referenced it a few times now… I may have even recipe’d it.

Anyway, this recipe connects because my day yesterday and that gorgeous chocolatey thing above are both full of love and kismet… or something like that. The recipe came together because I got some samples in from Kitch+Table, who I’ve worked with for Easy Eats and wanted to try it out on non-gluten-freers my last week of private chef-ing. The adorably talented 13-year old in the family loves brownies, so I figured we might as well have some fun with them.

Photo credit Kathy Schwartz for Kitch+Table

Photo credit Kathy Schwartz for Kitch+Table

First off, the brownies are delicious. I followed the very simply recipe on the bag to a T and was a bit wary when the batter was sticky and thick, but they baked up fudgey yet firm, rich yet not heavy. They have that signature crumb on top that many gluten-free brownie recipes miss. The boss family had no idea they were gluten-free, and the brownie aficionado ate the scraps around our little cut-out hearts with relish, going nuts for them. So stellar product to begin with (and I tried out two bags of this with equally stellar results). Go to Kitch+Table for purchasing or try my boozy Beer Brownies for something totally by scratch.

To spruce them up (this was the week after Valentines day) we used cookie-cutter hearts and layered them with thinly cut strawberries, some dairy-free fudge sauce leftover from my Chocolate Mallow Layer Cake and some dairy-free coconut Creme Anglaise, definitely two staple recipes to have in your pastry book.

Since leaving this job I’ve felt much emotionally calmer and steadier, and I know soon my body will catch up. And until then I’ll be thankful for the little moments, the big ones, the good things people are producing, and a little Creme Anglaise.

Brownie-Layer-Cakes---TheDustyBaker

Dairy-Free Creme Anglaise

This recipe sounds uber fancy but it’s relatively simple. Made with egg whites and just a little bit of sugar, it’s a delicately sweet addition for dressing up desserts.

1/4 cup egg whites
1/4 tsp cornstarch, tapioca starch or arrowroot starch
2 Tbsp white sugar
1 vanilla bean, de-beaned (slice the vanilla bean down lengthwise and use the back of the knife to scrape the beans out)
3/4 cup lite coconut milk

In a medium bowl, whisk egg whites and starch.

In a small pot, whisk together sugar, vanilla and milk. Whisk constantly over medium-ish heat until steaming. Pour over the egg mixture, whisking all the while, until thoroughly combined.

Pour back into pot and return to stove. Whisk constantly for 1-2 minutes, until slightly thick, coating the whisk.

Strain through a fine mesh strainer into a Pyrex measuring cup or small bowl, cover with plastic wrap and refrigerate for at least 2 hours or until cold.

*If you ever meet a guy in Denver with bright eyes who says he penned the name “Bloody Derby” for a Bloody Mary with bourbon in it, you have full permission to box his ears. I came up with it almost two years ago. This name has been pondered and considered. Do not trust this man. Then again, don’t box his ears, because he was in the army and is very able to kick your ass. Maybe just tickle him instead. I think he’s ticklish. Report back if you find out.

**The 4 of you who read this far down now know too. Between the 8 of us and the Denver guy and the guy I dated for five minutes when I came up with it and the bartender at the Ace hotel where we first ordered it I think we can make this Bloody Derby thing a thing. Just remember who started it. And I drank that Derby hours ago so there’s sadly not even a bourbon-infused reason for this rant.

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Filed under Dairy-free, Dessert, Gluten and Dairy Free, Gluten-Free, Recipes, Stories

60 More Miles to Beat Breast Cancer – And Pink Sweets to Come!

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My mother Doris and I in the Twin Cities in 2011.

I say the word “walk” a lot. To my dog, several times a day. To myself when I’m cranky at how slowly some people move on the streets of NYC. As a curse when my joints really hurt (yeah, this Nemo character isn’t helping today). And within my family as we talk about if we should do a “walk” or not this year.

The joy of the word and its meaning is not lost on me, since there was a time as a child Lyme Disease made it not possible for me to walk.

Over the past 20 years, this ability has ebbed and flowed in regards to ease. And in 2004 I first put my capabilities to the test in what was to be the last of the Susan G. Komen for the Cure New York City Breast Cancer 3-days. I walked 60 miles from Bear Mountain through the Bronx and on the Triboro into Queens, then again down into Brooklyn, over the Williamsburg Bridge into Manhattan, ferried it over to Staten Island, and then finished off the Bayone to Jersey. I made every step, and was so moved that I vowed to walk every city the Komen organization sponsor. I walked every step in 7 cities after that, recruiting family members and friends over the years. My illnesses challenged the “every mile” goal I’d had after I dealt with another bout of illness in 2008, but I still tackled two more cities in 2010 and 2011, first celebrating my father’s 60th birthday by walking with him in Phoenix and then with my mom and sisters in the Twin Cities.

My first walk, in 2004

My first walk, in 2004

This year my mother and I will once again walk, “60 Miles for 60 Years” being our motto as we celebrate her significant 60th birthday.

She’s the reason why I picked this walk. Seeing her support her friends and loved ones as they battled breast cancer over the years made me so thankful – both for my health and for the attention she’s given me as I’ve needed her support maybe more than most kids should. To this day she’s one of my strongest advocates, and walking with her is one of my greatest joys.

So together we’ll walk Seattle this coming September, with my siblings all on various crew teams in celebration. We’ll walk in laughter and tears for those we’ve loved, those we’ve lost, and those we’re walking to save before they need saving. We’ll celebrate her birthday, our friendship, and the thousands of people we’ll walk with. I’ll make as many steps as I can, and be cheering for her as she pounds miles I can’t. We’ll keep working hard to raise more than money – to raise awareness, unity, and solidarity.

I so can’t wait to walk.

If you feel so moved, please donate to help us achieve the $2,300 fundraising minimum we need to meet on top of our own personal travel funds to get to the starting line by clicking HERE or on the widget to the right. And check out our website, Walking for Udders, to see pictures and read stories from our last 9 walks.

And expect lots of pink sweet things to come in the next 7 months.

Happy Friday, stay warm east coasters,

- Jacqueline

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February 8, 2013 · 10:00 am